Tuesday, July 29, 2008

A few pics to share of our little miracles and an update...

Hi everyone...

Just wanted to post a quick update on Kate. To make a very long story short, the doctors were fairly confident that as of last Thursday, Kate had an infection of some sort so they immediately started antibiotics and took cultures to see if their hunch was correct. The cultures were negative after 24 hrs but due to a fever, high white blood cell count and some other factors, they were still convinced that she was "brewing" something inside of her tiny little body. The doctors decided to draw some spinal fluid to rule out meningitis. Just after the doctors did the fluid draw, they noticed that Kate's body was twitching rhythmically for about 20 seconds. The nurse practioner who did the draw said that although he wasn't exactly sure that he would call it a seizure, it definitely did not appear to be normal baby twitching that typically would only last a few seconds. As a precaution, they called neurology for a consult who suggested that they immediately put Kate on Phenobaritol, which is a medication used to control seizures and relieve anxiety. They gave her a relatively small dose and requested that she have an EEG (electroencephelogram) which measures and records the electrical activity of the brain. They also ordered a brain ultrasound to verify that she had no bleeding of the brain. The ultrasound came back normal and the EEG showed no signficant activity other than a few "spikes" in activity over the whole report period. The neurologist feels fairly comfortable stating that Kate didn't have a seizure, but they are going to continue giving her Phenobarbitol in weaning doses over the next 3 weeks. If she doesn't have any other episodes resembling the one she had on Saturday, they will do a repeat EEG and hopefully discontinue the medication. They're continuing to give her a 7 day course of antibiotics to fight the infection they initially suspected. The good news is, the Phenobarbital will not delay the possibility of Kate's surgery so the neonatologist told me today that she'll be continuing to push for the surgery as soon as the antibiotics are done. Kate looked much better today when I went for my daily visit. She was nice and pink and although a little groggy (one of the side effects of the Phenobarbital), she was doing well. Kate is continuing to grow on her IV nutrition and as of her last weigh in is approximately 2 lbs, 9 oz. Although delaying the surgery has been difficult because we're so anxious to see her begin feeding on breastmilk, it has given her an opportunity to grow and strengthen and she'll be in a much better condition when the time for her surgery does come. This little girl is going to be one tough cookie! We praise God for sustaining her ( and us!) through the tough weekend.

Good news about our little John...he continues to do FANTASTIC on his CPAP machine! He is really thriving on this machine....so much so that as of this afternoon, he moved over to the NICU step down room with his sisters! I can't tell you how excited I was to hear this! John weighs about 2 lbs, 6 oz. and now that he has recovered from his infection from 2 weeks ago, he has resumed his feeding schedule is back on track.

Elizabeth and Claire are both doing awesome. Both girls continue to do great on their nasal cannulas of oxygen and are eating up a storm these days. Miss Elizabeth is teetering on the 3 lb. mark (she was 2 lbs, 15 oz. as of yesterday) and Claire isn't too far behind. I got to hold both of them together the other day and I just have to share this story....I was "kangaroo holding" both girls (they were tucked inside of my shirt right against my skin so they could hear my heartbeat and use the warmth of my body to stay warm). They been out of their beds for awhile and were ready to go back into their isolettes. The nurse went to take Claire back to her bed and when she started to lift her up, Elizabeth put her arm around Claire's waist as if to say "you're not taking my sister!" It honestly was one of the most adorable things I have ever seen. So of course, I let them stay and snuggle with each other a while longer. I can't wait until Kate comes back to AGH so all four of them can snuggle together hopefully someday soon!

Before I share a few pics with you, I just want to take this opportunity to thank everyone who worked so hard at the car wash/bake sale that was held on our behalf this past weekend. A huge thank you to Kathleen Conn and Shelly James who put in so much time and effort to make the day such a success. The team of helpers who were washing and vaccuming cars, holding signs, grilling hot dogs, selling bake goods, etc. were truly wonderful. I cannot tell you how humbling and heartwarming it is to see people working so hard and giving up their free time in order to help friends in their time of need. We feel so blessed. Our friends and family from Zion have been a godsend and we give thanks to our Heavenly Father every day for their love and support.

OK...just a few pics to share for now. I actually have a few more, but I need still need to have them scanned. I'll have one of Kate, I promise! More to come over the next few days...

This is me "kangarooing" with Elizabeth (on the left) and Claire (on the right)...



A close up of Elizabeth (on the left) and Claire (on the right)... are they stinkin' adorable or what?!?!?!?

Our little man John....I absolutely love this picture! This is while he was still on the ventilator - before he graduated to the CPAP machine.

Please continue to pray for the health and progress of all four babies.
Keep checking over the next few days for some additional pictures!

8 comments:

Anonymous said...

Carrie and John,
Thank you always for the updates - for you to take the time in all of this to share news about the quads is amazing. I teared up seeing the picture of you with the girls Carrie - what a beautiful shot of Mommy, Claire and Elizabeth! And John is adorable! Can't wait to see little Kate. It will be so awesome once they are all together.
Stay strong guys and know that we are all thinking of and praying for you.
Tracy

Suzanne said...

thank you SO much for the updates! no doubt you have been in our prayers constantly--especially little kate. LOVED the pics--they are beautiful, carrie! you look amazing!...hang in there and lean on God for strength and peace...sending you LOTS of love!!!

Anonymous said...

OMG!!! They are amazing and so beautiful!!!
What a WONDERFUL sight to see you with your girls... can't wait for you to have them all at home with you and big brother Luke!
Just so you know, you have everyone here at SF in tears... of joy, of course, but tears nonetheless!
It is so kind of you to give us these updates and little peaks into your lives, when you probably have 1,000 other ways to spend your time... we so appreciate it.
You are ALL in our prayers daily and we think of you often.
Love and well wishes to you and your little dumplin's!
~Gina & Jake

Anonymous said...

Just want to let you know that you are, all, still in our prayers; not only for the health of all of your little ones, but also that God be with you in even those "little" things in life.
Lori, Jim, Abby, and Nate

Portraits by Natalie said...

Carrie~

They are soooo beautiful!! I can hardly wait to get my camera on them! You all continue to be in my prayers, and I'm hoping that Kate's arrival at AGH will be coming in a post soon! Thanks for updating us!

~Natalie

Anonymous said...

Aunt Carrie, i hope the babys come home soon. love Joey

Misty said...

I am glad to hear of all of the updates. I also have quads and one of mine went thru much of what your Kate is going thru. I will tell you to stay strong. It is a roller coaster, but my JuJu is a walking miracle. And I have faith that your Kate will be too.
Blessings to you and your family!
Misty,
PS congrats on selling the house!

Anonymous said...

Congratulations on the sale of your house. it must have been pretty hard for you to say goodbye to it. But there are bigger and better things coming your way. The pictures are just adorable and I can imagine how totally exciting it was for you to be holding them.. You must all stay strong and keep the faith and know that we are all praying for all of you.
Rita